What You Can Do

New Zealand patients desperately need more options to keep them living. Myeloma treatments in New Zealand are very outdated compared to other countries. Not only does this mean patients do not have access to treatments available in other countries to keep them living, it also means they are missing out on trials because we do not have international standard of care treatments.

1

Tell the government & Pharmac

Ask to meet with your MP, or write to politicians and Pharmac using our templates:

To MPs

They need to give Pharmac sufficient funding for these medicines or they need to push for these medicines to have sufficient funding. The template letter and email addresses are here.

To Pharmac

They need to seek sufficient budget from the government to fund these medicines, and they need to put daratumumab, carfilzomib, and belantamab mafodotin at the top of the Options for Investment list. The template letter and email addresses are here.

2

Contact the media

Write a letter to the editor of your local paper about the need for medicines like daratumumab, carfilzomib, belantamab mafodotin; and how we need better funding for Pharmac.

Contact a journalist and ask them to write an article about the need for better treatments for Myeloma. Myeloma NZ can provide additional information if needed.

3

Spread the message on social media

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